Didn’t have the greatest week and weekend, but it’s going to get better starting tomorrow (gosh darn it!) A couple good things did happen though. I gave Microsoft OneNote training to folks at my office on Monday, and in Hamilton on Tuesday. Unfortunately, the weather was insane driving to Hamilton and the normally 40 minute drive took over an hour and a half. However, once I got there and set up, everything was great. Had a really nice class and I may be going back in the future to give more training.
On Thursday, I taught OneNote at our office again. I was done at 12:45 that day and went for my Tysabri infusion. Blah! Never a truly enjoyable experience but it’s all good as the drug has done me well over the last few years. I was tested for antibodies for the JC virus, which can lead to progressive multifocal leukoencephalopathy (PML), which is a fatal brain infection. I’ve been negative for this virus since starting Tysabri, however, I got a not so great call from the MS clinic in Hamilton last week, stating I am now positive. The test is indexed and my reading was quite low, so I can still keep getting my monthly infusions. I will be tested for it again in six months and we’ll see if the numbers have changed. Paws crossed it doesn’t go up because I really don’t want to go off Tysabri. Anyway, at this infusion, I had to have more blood work done. I brought my own heating pad to warm up the spot before the dreaded needle. Worked quite well and was cute!
After the infusion, Mike and I went over to Antipastos to pick up the turkey dinners my mother and I will be having on Christmas Eve. Had them from there last year too – very good! Soon after we got back to my place, my little mother arrived. We were all going to Betty’s Restaurant in Niagara Falls for the MS Society’s Christmas dinner. Jan was rather excited that there were other folks her size there:
It was really nice to see everyone from the MS Niagara Chapter of Hope. What a great venue – I hadn’t been to Betty’s in years. They are famous for their fish and chips and their awesome lemon meringue pie:
I didn’t have enough room so I gave mine to Jan to take home. All three of us had a great evening. We were also glad the weather held off for the drive home. They called for freezing rain that evening and night.
On Friday, I started to feel pretty punk. I thought it was more than just the effects of the Tysabri, but I wasn’t sure. Just felt lousy all over. I made it through the full day of work though. Felt much worse on Saturday. Mike and I had plans but I ended up spending the whole day on the couch or in bed. He was nice enough to stop by with a coffee and croissant though:
The kitties kept me company, when they weren’t being naughty:
And the naughty, such as Mya trying to get in the bag of Christmas pressies my mother brought over:
Then Boo trying to get into the cabinet:
I decided to check out the bridge traffic for Saturday. It was over an hour wait going into the States on the Queenston Bridge:
Ugh, glad I wasn’t anywhere near that!
For the last few nights, my insomnia has returned, which really hasn’t helped with how I’ve been feeling. From last night (and this morning), I took a pic of my clock about 20 minutes after I woke up:
I very rarely ever update anything on Facebook, but I decided to put something on the news feed:
I then finished a totally awesome book (the second part to Pillars of The Earth, which I mentioned in previous blogs):
Then I played some games on my iPad, took another chunk of my sleeping pill, and fell asleep soon after this:
Needless to say, I’m a wee bit tired today! I will feel better tomorrow though – I’m not going to feel this yucky for Christmas Eve and Day!
Today’s symptoms: Tons of bone crushing pains all over and a really bad headache. My sinuses are bothering me again too, but I think they feel a little better today than they did yesterday. At least that’s what I’m going to keep telling myself.
Lizzy McFly 